Showing posts with label pain. Show all posts
Showing posts with label pain. Show all posts

Friday, March 18, 2011

Fear

You have two choices when you get cancer:  you can get very fearful or lose fear entirely.  I have to admit I wasn't too please when told that I had "Hodgeskin's Lymphoma", stage three and a half, which means everywhere.  My entire lymph system and then into my spleen and spine.  It was growing, well, like cancer!
I had this alien being eating me from within!  I always thought that a cement truck might get me or that I might fall off a roof, something sudden, bloody, a tearing of the flesh and broken bones, a crushed skull and over.
Well, that may yet be, but first I had to deal with cancer.
     I did discover that no one dies of cancer.  I remember "cancer insurance" being sold in the 1960's, not insurance if you get cancer but insurance if you should die from it. What a cool scam that was!  You die from organ failure or pneumonia, that "old man's friend".  Or, as I discovered, you can die from "the cure".
     The "cure" is mean and that is all there is to that!  It is a voodoo concoction made from World War One Mustard Gas!  Yes, it really is.  It is designed to kill and it does so indiscriminately.  Surgery with a hand grenade.  It kills the cancer cells and a lot of good ones in the process.  I had 12 sessions of ABVD, horrible drugs that are mostly mentioned by initials only.  Every two weeks for six months!  It is all kind of crazy, you mark the dates on a calendar and get to look forward to the experience!  No, I can't go to lunch with you, I've got my chemo to do!
    I never got sick so you could put a name to it anyway.  I was never nauseous, never threw up, but I sure couldn't eat!  I began the process as a welder-construction worker, strong and able at 225 pounds and weighed 172 pounds when I got my final chemo shots!  It is not a diet I would recommend to anyone.
I never really thought much about the day after death but there were times when I didn't think I was going to make it.  You get pretty weak; I couldn't lift 20 pounds!  You get time to stand back and pretend it is all happening to someone else, like it is all a movie, or an unfinished book and you are not really sure how it will end.
    You sleep a lot.  You are always tired and I have never really found a good way to describe that, so someone not affected could really understand what you go through.  It is a tiredness where death would be welcomed.  My mind was always active even when my body couldn't cope.  I could still think!  I did lose a sense of "future", couldn't even think ahead to the next gardening season.
    What I chose to do or maybe did without choice is to relive my life.  I have done it all twice!  My earliest memories, all my school days, my first guitar, the poetry I used to write, old girl friends, my travels, adventures and disappointments and where I succeeded, all have been lived twice.  It is fascinating how in the deep recesses of your mind, you remember everything!  And I thought a lot about food.  I liked the idea of it even though I couldn't eat it.
    Death and taxes, right?  None of us are going to get out of this alive.  So you learn to cherish life, appreciate the now of it all, each breath, each flower and smell, each touch and every kind word.
I am left with pretty bad neuropathy in my hands but the cancer is gone!  I am not sure what "in recession" means?  That has the sound of still having it but it is getting smaller?  My doctor says he can't find any cancer in me and spent a few thousand dollars trying to do so.  It is gone.
     Some days my hands are so bad that I would just like to sit and hold them.  I don't allow this for two reasons.  The first is that in reliving my life I had no memory of pain.  Pain is not something we easily carry with us.  Too heavy, maybe, or just not important.  I remember getting the Pet and Cat scans and lots of x-rays and the doctor asking me when I broke my shoulder?  It was evidenced in the tests but not in my memory, certainly nothing I ever went to a doctor about. 
    The second reason I ignore my neuropathy is that there are things I want to do.  The will to do them is stronger than the fear of pain.  I do have a fear of atrophy.  I exercise my hands everyday, all the time, constantly.  My cancer doctor says nerves are slow to grow and it might take eight years for my hands to get better.  My regular doctor says that in eight years I will be used to it.  It is like stirring a five gallon bucket full of cut glass.  It is not pleasant but I can do it.
My Other Blog is HERE

Wednesday, February 2, 2011

Cuts and Bruizes

Well, crap!  I just cut my fingers pretty bad so I am taking a break from welding!  Bandaged up and, of course, there is no pain at all.  That is part of the problem with neuropathy, can't feel anything but cut glass and electrical shocks in my hands and my feet are just plain numb.  It is my fault.  I knew better.  I should have done a better job clamping the metal to my work table.  I didn't and the grinding made it go flying and it smashed into my fingers!  I didn't even feel it, just noticed the blood everywhere!  First I found the piece on the floor and then I went into the house for clean up and bandages.
     This is a downside to neuropathy.  I haven't found the upside yet but I am still searching for it.  I think I will go have some breakfast and then back to work!  I am happy that I can do it at all.
My other blog is Here.

Sunday, January 23, 2011

My Hands

Sometimes my hands hurt worse than other times.  They always hurt when I think about them, sort of like giving them that power to hurt.  Today I awoke at 2AM and they were throbbing as if having spent a couple hours in a cement mixer.  I can move my fingers but I can't make a fist, touching anything is like being electrocuted, but first you would have to stir a bucket full of cut glass and add salt, then you would get the idea.  If I didn't have my rabbit fur lined gloves I think I would cry.  I will order two more pairs today! They are dress gloves really and not designed to be worn 20 hours a day as I do.  I wear them for welding and just about everything.  They are soft and gentle and just prevent the over sensation on my hands.  Sometimes I feel like just sitting, holding my hands in my lap and just doing nothing.  I have tried this technique and it doesn't work for me.  In fact it is about the worst thing I can do.  When I concentrate on the pain, well, that is what I get.
     What works for me is movement, like a basketball player continuing to play while injured.  I will get up, take a bath as hot as I can stand it and go out to my studio and get lost in a project.  Soon enough my focus is on that and I will forget about my hands entirely.  It is a strange thing about my shop and work.  When at my sickest I went eight months without working.  I couldn't do it and the phone wasn't ringing anyway.  Now that I am getting stronger the phone is ringing and I have plenty of work, doing three jobs at the same time.
I am sure there is some kind of mystery there.
This is what chemo does to fingernails! 
My Other Blog is Here.

Monday, September 27, 2010

Pain Management

Ralph liked my butterflies so I found another one.
These are stainless steel over copper sheet and then powder-coated in clear. There is a lot of hand work involved in making these, a lot of fitting and grinding and I am unable to do that now. I wake up early in the morning and it feels as though my hands were in a pressure cooker all night long. I am not sure what to do about this. It is discouraging for an artist not to be able to work. I still get ideas and things I want to do but the pain is pretty constant and throbbing. So, I have begun my day complaining and that is not a good way to start! I do comparative therapy and realize that there are a lot of people worse off than I am. I could be in Haiti and have my tent, my only home blown down in the rains. And I think it is only my hands that hurt; the cancer is gone and I am healing, it is just that I want to run with it, lose myself in my shop and build things! I should be thankful that I have the desire. The ability will come. Vicodine helps, at least it offers a distraction and when it kicks in, the throbbing subsides and I am able to work for fifeteen minutes at a time. Time is my friend now, I am getting stronger every day!